STM Update

I got another email just now about STM's Angel Baby...Here's the gist of it:

I am sending out the information about the disease that Angel Baby has gotten ONE positive test result on. This is a very SERIOUS and RARE disease. The doctors are repeating this test, as it does come back as a False/Positive, sometimes. Also, if the second test comes back positive, they will do a biopsy of Angel Baby's thigh muscle.PLEASE pray, pray, PRAY!
The doctors are monitoring her episodes of NOT breathing, and she went all day yesterday without one episode. If she keeps going for 2 full days, they will try again to take her off the respirator. She crashed Monday 2 hours after removal.
I will try to keep all updated, as soon as I find out more.

Very long-chain acyl-CoA Dehydrogenase Deficiency(VLCADD) is an autosomal recessive disorder of fatty acid oxidation resulting in an inability to breakdown long-chain fatty acids for ketone and ATP synthesis (see figure). Clinical symptoms are often triggered by prolonged fasting, infection or exercise. VLCADD is treated with diet and supplemental carnitine.

There was much more info in the email about this disorder, but unless you have a medical degree, it's like reading Greek. I'm going to do a search & see what I can find in plain English...but fact of the matter is, this is serious...if it's what's wrong. They still aren't sure & STM is having a hard time. Pray for her & the baby both. Please.